Ehlers-Diagnosis Syndrome

For a long time after that appointment with that chiropractor in 2006 who told me I had this weird thing I had been born with of joints bending backwards, the words “Ehlers-Danlos Syndrome” haunted me.  I couldn’t say them.

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Madora Pennington
The Day I Had A Name For It

By the time I was diagnosed, I had been practically bedridden with pain and fatigue for a few years. I say “practically” because with the taser-like pain in my spine, I couldn’t lie down, sit, or stay in any position for long, not even lying in bed, no matter how tired I was. 

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Madora Pennington