Overcoming Ehlers-Danlos — Less Flexible

Goodbye, Kassandra Shore

Death by ill-advised spine surgeries.

Surgery, Goodbye, Hopelessness & SuicideMadora PenningtonMay 1, 2021

Walking in Los Angeles

Two weeks into quarantine.

Covid-19, Go Clippers!, Hopelessness & Suicide, Coming to TermsMadora PenningtonApril 18, 2020

Let’s Strengthen Our Lungs!

For Covid-19 and . . .

Let’s... !, Covid-19, The Ocean, Hopelessness & SuicideMadora PenningtonApril 13, 2020

Homebound, On Disability

and losing my f*ing mind.

Bone Density, Brain & Nervous System, Go Clippers!, Injecting Vitamin C, Long Term Opiates, On..., Spine Problems, Surgery, Coming to Terms, Fatigue, Exercise & Posture, Pain & Disability, Hopelessness & Suicide, Sleep & PeaceMadora PenningtonJanuary 12, 2020

My Relationship With Dr. Plance

Then and now.

Injecting Vitamin C, Un-Disabled, My..., PRP & Prolotherapy, Exercise & Posture, Healing & Hope, Hopelessness & SuicideMadora PenningtonSeptember 4, 2019

On the “Connective Tissue Advantage” 🙄

by the British Society for Paediatric and Adolescent Rheumatology.

Childhood & EDS, On..., Hopelessness & SuicideMadora PenningtonAugust 29, 2019

Gurl, You Kinda Are an Elite Athlete

Two piers, a finish line, and two miles of ocean in between.

The Ocean, Jumping For Joy, Spine Problems, Coming to Terms, Hopelessness & Suicide, Music & LyricsMadora PenningtonAugust 8, 2019

Searching for My Molecular Diagnosis - Round 7

Dear Crazed EDSer,
Thanks for the shout-out.

Coming to Terms, Jumping For Joy, Diagnosis & DNA, Low Dose Naltrexone, Searching For..., Un-Disabled, Hopelessness & Suicide, Injecting Vitamin C, Pilates & Yoga, Exercise & PostureMadora PenningtonJuly 31, 2019

On The Healing Power of Vitamin C

Repairing tendons, rebuilding cartilage and down-regulating mast.

Exercise & Posture, Healing & Hope, On..., Low Dose Naltrexone, Look Good & Have Fun, Injecting Vitamin C, Hopelessness & Suicide, Un-Disabled, Sleep & Peace, Dysautonomia & POTS, Mast Cell (Urticaria)Madora PenningtonMarch 21, 2019Ascor

On “The Mighty”

That “friend” who turns you against other people in your life.

Hopelessness & Suicide, On...Madora PenningtonMarch 14, 2019The Mighty

Why People Hate My Blog

and what I have to say about it.

Healing & Hope, Hopelessness & Suicide, My..., PTSD & Violence, Brain & Nervous System, Anxiety & DepressionMadora PenningtonFebruary 6, 2019 Comments

My Dose of Ascor for hEDS

Perhaps hEDS causes my body to waste C, and injecting it into my fat gets around that on-going error = RELIEF!!

Injecting Vitamin C, Hopelessness & Suicide, Sleep & Peace, Low Dose NaltrexoneMadora PenningtonJanuary 31, 2019AscorComment

Ehlers-Disaster Syndrome

Always look like a champion, if only in a selfie.

The Ocean, Exercise & Posture, Hopelessness & Suicide, Ehlers-D... Syndrome, Healing & Hope, Love & Luck, PTSD & Violence, Ehlers-Digestion ProblemsMadora PenningtonSeptember 27, 2018P2P 2018Comment

The Finish Line I Hoped to Cross

Not trying is (yawn) boring.

The Ocean, Exercise & Posture, Healing & Hope, Hopelessness & Suicide, Jumping For JoyMadora PenningtonSeptember 6, 2018P2P 2018Comment

On Therapy, the Psycho Kind

I kept trying therapy, and I kept flunking out.

Brain & Nervous System, Hopelessness & Suicide, On..., Sleep & Peace, Long Term OpiatesMadora PenningtonApril 17, 2018

C Shortage 😧

At the turn of the year, McGuff Compounding Pharmacy ran out of ascorbic acid. January came, and everyone wanted more. Including me. I had to get in the queue and wait. 😡

Jumping For Joy, Injecting Vitamin C, Love & Luck, Pain & Disability, Hopelessness & Suicide, Go Clippers!Madora PenningtonJanuary 25, 2018

Ocean Swim

I love to swim in the ocean. It is where I wanted to die.

Childhood & EDS, Diagnosis & DNA, Travel & Language, Hopelessness & Suicide, Love & Luck, PTSD & Violence, The OceanMadora PenningtonJuly 15, 2017Ocean Race

Ehlers-Diagnosis Syndrome

For a long time after that appointment with that chiropractor in 2006 who told me I had this weird thing I had been born with of joints bending backwards, the words “Ehlers-Danlos Syndrome” haunted me. I couldn’t say them.

Ehlers-D... Syndrome, Exercise & Posture, Hopelessness & Suicide, Diagnosis & DNA, Love & LuckMadora PenningtonJuly 11, 2017