by the British Society for Paediatric and Adolescent Rheumatology.
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What is better in life than love.
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My favorite donut shop is one further away. It is my favorite because the owner has become my friend.
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I live in historic Los Angeles, a.k.a. the hood. No place I’d rather be.
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Caretake someone with Ehlers-Danlos? No thanks! I would get away from me if I could.
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Be a doctor? No thanks! I would rather clean hotel rooms, as long as the pay were the same.
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Not my kid. Sure wish he were. Especially if he were not related to me.
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Lately for physical therapy, I pack up my toys and meet my physical therapist at the beach.
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Où est mon défaut génétique?
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I love to swim in the ocean. It is where I wanted to die.
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By the time I was diagnosed, I had been practically bedridden with pain and fatigue for a few years. I say “practically” because with the taser-like pain in my spine, I couldn’t lie down, sit, or stay in any position for long, not even lying in bed, no matter how tired I was.
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If I had only joined the circus, I would have been one of the freaky back benders. Eww.
My small joints are my biggest problems. Feet, hands, spine, ouch, ouch, ouch.
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