During a follow-up appointment for my broken foot surgery, I asked the doctor what drugs he gave me, since I was so delightfully bombed I cannot remember waking up.

Surgeon: You’ll have to ask the anesthesiologist, but no matter how much he gave you, you wouldn’t stop squirming.

Me: Really? Oh no.

Surgeon: It was a big problem.

Me: Oh, I am so sorry.

Surgeon: We had to get another guy to scrub up, come in and hold your knee.

Me: (giggling) Really? Oh my god.

Surgeon: I could hardly finish. It took me twice as long as it should have.

Me: (laughing) I am so so sorry. I saw that big payment my insurance gave you. You definitely earned it.

Surgeon: I got paid? How much?

Me: About $6,200

Surgeon: That’s a lot of money. You never know.

Me: Tech insurance. It’s the best. Used to be entertainment industry.

Surgeon: Not anymore. Now it’s terrible.

Me: No. If it were still the best, Mr. Pennington would have to go be an actor.

Surgeon: Did the payment hit my bank account?

Me: My insurance doesn’t tell me that part. Good thing this is private clinic. If this were in my shared medical records, no one would ever take me for surgery ever again. Oh man, I am so sorry.

#EhlersDrama

What can I do?

My body is uncomfortable, hyper sensitive, weird with drugs, perceives too much.

But even so . . .

I used to never heal, never recover. I was so delicate.

I couldn’t build muscle or do anything to make a significant improvement in my rotten case of hEDS.

I had to avoid surgery because the procedure itself would make my unlivable spine pain even worse.

And now?

All that fighting the surgery team under heavy sedation
and then restraint
and I wasn’t even sore
or bruised
or in pain anywhere except my poor foot.

If the surgeon hadn’t told me about all this #EhlersDrama, I never would have known.

How did this happen?

7 years of daily injections of ascorbic acid
+ exercise
+ circulation
+ strength
+ posture
+ sleep
+ healing
= very high functioning hypermobility Ehlers-Danlos Syndrome.

Yay!!