Overcoming Ehlers-Danlos — Less Flexible

On Healing By Extended Fasting

On Healing By Extended Fasting

I feel f*cking awesome.

On..., Fasting, Long Term Opiates, Healing & Hope, Mast Cell IssuesMadora PenningtonSeptember 17, 2019

My Relationship With Dr. Plance

My Relationship With Dr. Plance

Then and now.

Injecting Vitamin C, Un-Disabled, My..., PRP & Prolotherapy, Exercise & Posture, Healing & Hope, Hopelessness & SuicideMadora PenningtonSeptember 4, 2019

On the “Connective Tissue Advantage” 🙄

On the “Connective Tissue Advantage” 🙄

by the British Society for Paediatric and Adolescent Rheumatology.

Childhood & EDS, On..., Hopelessness & SuicideMadora PenningtonAugust 29, 2019

2019 Dwight Crum Pier-to-Pier

2019 Dwight Crum Pier-to-Pier

Hat down, cross town, living like a rock star.

The Ocean, Music & Lyrics, Dysautonomia & POTS, Ehlers-Digestion ProblemsMadora PenningtonAugust 21, 2019

Hey, Jameela!

Hey, Jameela!

Thanks for the shout out.

Explaining EDS, Jumping For Joy, Bone Density, Doctors & Hospitals, Low Dose Naltrexone, Love & Luck, Exercise & Posture, Mast Cell Issues, Dysautonomia & POTSMadora PenningtonAugust 14, 2019

Gurl, You Kinda Are an Elite Athlete

Gurl, You Kinda Are an Elite Athlete

Two piers, a finish line, and two miles of ocean in between.

The Ocean, Jumping For Joy, Spine Problems, Coming to Terms, Hopelessness & Suicide, Music & LyricsMadora PenningtonAugust 8, 2019

Searching for My Molecular Diagnosis - Round 7

Searching for My Molecular Diagnosis - Round 7

Dear Crazed EDSer,
Thanks for the shout-out.

Coming to Terms, Jumping For Joy, Diagnosis & DNA, Low Dose Naltrexone, Searching For..., Un-Disabled, Hopelessness & Suicide, Injecting Vitamin C, Pilates & Yoga, Exercise & PostureMadora PenningtonJuly 31, 2019

The Problem With Pilates and Yoga

The Problem With Pilates and Yoga

If you have Ehlers-Danlos Syndrome.

Exercise & Posture, Pilates & Yoga, Pain & Disability, Bone DensityMadora PenningtonJuly 24, 2019

Gurl, You Are An Elite Athlete

Gurl, You Are An Elite Athlete

If only in your fantasies.

The Ocean, Look Good & Have Fun, Jumping For JoyMadora PenningtonJuly 17, 2019

Let’s Break Down <em>Real Housewives of Beverly Hills</em> - Season 9

Let’s Break Down Real Housewives of Beverly Hills - Season 9

No one should submit to being a punching bag for others.

Let’s... !, Look Good & Have Fun, Exercise & PostureMadora PenningtonJuly 11, 2019Comment

The Day I Got Off Long-Term Opiates

The Day I Got Off Long-Term Opiates

Repost: When the last of my last tiny opiate dose metabolized out.

Long Term OpiatesMadora PenningtonJuly 4, 2019OffOpiates

On Where to Start with Injecting C

On Where to Start with Injecting C

Not that I am giving medical advice or anything.

On..., Injecting Vitamin C, Dysautonomia & POTS, The Ocean, Brain & Nervous System, Healing & HopeMadora PenningtonJune 27, 2019

Let’s Learn About Rare Genetic Disorders

Let’s Learn About Rare Genetic Disorders

To understand HEDS better.

Let’s... !, Un-Disabled, Diagnosis & DNAMadora PenningtonJune 20, 2019

On Repurposing Drugs for Rare Disease

On Repurposing Drugs for Rare Disease

At the Global Genes 2019 RARE Drug Development Symposium.

Diagnosis & DNA, Jumping For Joy, Injecting Vitamin C, Look Good & Have Fun, On..., Travel & Language, Un-Disabled, FatigueMadora PenningtonJune 13, 2019

My Insurance Paid for Ascor®

My Insurance Paid for Ascor®

And Walgreens filled it.

Injecting Vitamin C, The OceanMadora PenningtonJune 6, 2019

On the Disease of Scurvy

On the Disease of Scurvy

Is hEDS an inherited form of scurvy?

Injecting Vitamin C, On..., Un-Disabled, Ehlers-Dental ProblemsMadora PenningtonMay 30, 2019Ascor

My Purple Dior Satchel

My Purple Dior Satchel

What use are things in the life of an invalid?

Un-Disabled, Coming to Terms, Healing & Hope, My...Madora PenningtonMay 23, 2019

On Brené Brown

On Brené Brown

And my elaborate régime de beauté.

Anxiety & Depression, Look Good & Have Fun, Long Term Opiates, On...Madora PenningtonMay 15, 2019

On Medical Marijuana

On Medical Marijuana

And more on my long-term opiate use.

Long Term OpiatesMadora PenningtonMay 9, 2019

On Making C Shots Hurt Less

On Making C Shots Hurt Less

Here are the tricks.

Injecting Vitamin C, Coming to Terms, Look Good & Have Fun, On...Madora PenningtonMay 2, 2019AscorComment