Overcoming Ehlers-Danlos — Less Flexible

Gurl, You Are An Elite Athlete

Gurl, You Are An Elite Athlete

If only in your fantasies.

The Ocean, Look Good & Have Fun, Jumping For JoyMadora PenningtonJuly 17, 2019

Let’s Break Down <em>Real Housewives of Beverly Hills</em> - Season 9

Let’s Break Down Real Housewives of Beverly Hills - Season 9

No one should submit to being a punching bag for others.

Let’s... !, Look Good & Have Fun, Exercise & PostureMadora PenningtonJuly 11, 2019Comment

The Day I Got Off Long-Term Opiates

The Day I Got Off Long-Term Opiates

Repost: When the last of my last tiny opiate dose metabolized out.

Long Term OpiatesMadora PenningtonJuly 4, 2019OffOpiates

On Where to Start with Injecting C

On Where to Start with Injecting C

Not that I am giving medical advice or anything.

On..., Injecting Vitamin C, Dysautonomia & POTS, The Ocean, Brain & Nervous System, Healing & HopeMadora PenningtonJune 27, 2019

Let’s Learn About Rare Genetic Disorders

Let’s Learn About Rare Genetic Disorders

To understand HEDS better.

Let’s... !, Un-Disabled, Diagnosis & DNAMadora PenningtonJune 20, 2019

On Repurposing Drugs for Rare Disease

On Repurposing Drugs for Rare Disease

At the Global Genes 2019 RARE Drug Development Symposium.

Diagnosis & DNA, Jumping For Joy, Injecting Vitamin C, Look Good & Have Fun, On..., Travel & Language, Un-Disabled, FatigueMadora PenningtonJune 13, 2019

My Insurance Paid for Ascor®

My Insurance Paid for Ascor®

And Walgreens filled it.

Injecting Vitamin C, The OceanMadora PenningtonJune 6, 2019

On the Disease of Scurvy

On the Disease of Scurvy

Is hEDS an inherited form of scurvy?

Injecting Vitamin C, On..., Un-Disabled, Ehlers-Dental ProblemsMadora PenningtonMay 30, 2019Ascor

My Purple Dior Satchel

My Purple Dior Satchel

What use are things in the life of an invalid?

Un-Disabled, Coming to Terms, Healing & Hope, My...Madora PenningtonMay 23, 2019

On Brené Brown

On Brené Brown

And my elaborate régime de beauté.

Anxiety & Depression, Look Good & Have Fun, Long Term Opiates, On...Madora PenningtonMay 15, 2019

On Medical Marijuana

On Medical Marijuana

And more on my long-term opiate use.

Long Term OpiatesMadora PenningtonMay 9, 2019

On Making C Shots Hurt Less

On Making C Shots Hurt Less

Here are the tricks.

Injecting Vitamin C, Coming to Terms, Look Good & Have Fun, On...Madora PenningtonMay 2, 2019AscorComment

On Human Connection

On Human Connection

The Internet vs. IRL.

Exercise & Posture, On..., Go Clippers!Madora PenningtonApril 25, 2019

2019 EDS Society Global Learning Conference

2019 EDS Society Global Learning Conference

Register here.

Diagnosis & DNAMadora PenningtonApril 18, 2019

Ehlers-Trauma Syndrome

Ehlers-Trauma Syndrome

3:13 a.m. Awake.

Low Dose Naltrexone, Pain & Disability, Sleep & Peace, Ehlers-D... SyndromeMadora PenningtonApril 11, 2019

Global Genes 2018

Global Genes 2018

My favorite place to be someone who was born sick. Register for 2019 here.

Coming to TermsMadora PenningtonApril 4, 2019

On ‘Serial’ and Adnan Syed

On ‘Serial’ and Adnan Syed

Contemplating the prison of Ehlers-Danlos Syndrome.

Coming to Terms, Anxiety & Depression, Ehlers-Danlos Script, PTSD & Violence, Long Term OpiatesMadora PenningtonMarch 28, 2019

On The Healing Power of Vitamin C

On The Healing Power of Vitamin C

Repairing tendons, rebuilding cartilage and down-regulating mast.

Exercise & Posture, MAST Issues, Healing & Hope, On..., Low Dose Naltrexone, Look Good & Have Fun, Injecting Vitamin C, Hopelessness & Suicide, Un-Disabled, Sleep & Peace, Dysautonomia & POTSMadora PenningtonMarch 21, 2019Ascor

On “The Mighty”

On “The Mighty”

That “friend” who turns you against other people in your life.

Hopelessness & Suicide, On...Madora PenningtonMarch 14, 2019The Mighty

Searching for Neck Pain Relief

Searching for Neck Pain Relief

My neck rarely bothers me now. Happy tears 😢.

Searching For..., Pain & Disability, Exercise & PostureMadora PenningtonMarch 7, 2019Comment