Diagnosis & DNA — Overcoming Ehlers-Danlos

Is Ehlers-Danlos a Disease of Dissolving Collagen?

Dr. Forest Tennant - Intractable Pain Syndrome Research & Education

Brain & Nervous System, Healing & Hope, Surgery, Un-Disabled, Fatigue, Foot Problems, Diagnosis & DNA, Happy...!, Covid-19Madora PenningtonJanuary 3, 2021

On Wasted Research

that doesn’t help understanding and treatment.

Diagnosis & DNA, Ehlers-Digestion Problems, Explaining EDSMadora PenningtonNovember 14, 2019

Um, EDS is Common?

Oh, for sure!

Explaining EDS, Diagnosis & DNAMadora PenningtonNovember 12, 2019

Searching for My Molecular Diagnosis - Round 7

Dear Crazed EDSer,
Thanks for the shout-out.

Coming to Terms, Jumping For Joy, Diagnosis & DNA, Low Dose Naltrexone, Searching For..., Un-Disabled, Hopelessness & Suicide, Injecting Vitamin C, Pilates & Yoga, Exercise & PostureMadora PenningtonJuly 31, 2019

Let’s Learn About Rare Genetic Disorders

To understand HEDS better.

Let’s... !, Un-Disabled, Diagnosis & DNAMadora PenningtonJune 20, 2019

On Repurposing Drugs for Rare Disease

At the Global Genes 2019 RARE Drug Development Symposium.

Diagnosis & DNA, Jumping For Joy, Injecting Vitamin C, Look Good & Have Fun, On..., Travel & Language, Un-Disabled, FatigueMadora PenningtonJune 13, 2019

2019 EDS Society Global Learning Conference

Register here.

Diagnosis & DNAMadora PenningtonApril 18, 2019

Searching for My Molecular Diagnosis - Round 6

What is the point of searching for my genetic cause?

Doctors & Hospitals, Diagnosis & DNA, Searching For..., Un-DisabledMadora PenningtonMarch 5, 2019Comment

Lena Dunham has EDS?

EDS gang sign.

Diagnosis & DNA, Doctors & Hospitals, Anxiety & Depression, PTSD & Violence, Look Good & Have FunMadora PenningtonDecember 20, 2018lena Comments

I Hate My Feelings

Why don’t they just go away.

Anxiety & Depression, Diagnosis & DNA, My..., Pain & Disability, Travel & Language, Music & Lyrics, Low Dose NaltrexoneMadora PenningtonOctober 11, 2018Comment

My Drinking Problem

And that’s when I knew I had a drinking problem.

Diagnosis & DNA, Travel & Language, Brain & Nervous System, Doctors & Hospitals, My..., Go Clippers!, Dysautonomia & POTSMadora PenningtonFebruary 15, 2018ER

My People

When people have the same genetic defect, this causes them to have similar facial features.

Diagnosis & DNA, Travel & Language, Exercise & Posture, Jumping For Joy, My..., Go Clippers!Madora PenningtonNovember 9, 2017

Global Genes, Basketball Dreams

Global Genes Rare Patient Advocacy Summit

I go every year. This conference is my favorite place to be someone who was born sick. You can watch the videos here.

Diagnosis & DNA, Jumping For Joy, Exercise & Posture, Travel & Language, Go Clippers!Madora PenningtonNovember 2, 2017

The New Diagnostic Criteria

Our diagnostic criteria was recently revised. Here it is. Read it for yourself.

Exercise & Posture, Diagnosis & DNA, Injecting Vitamin CMadora PenningtonOctober 26, 2017