Death by ill-advised spine surgeries.
Read MoreTwo weeks into quarantine.
Read MoreFor Covid-19 and . . .
Read Moreand losing my f*ing mind.
Read MoreThen and now.
Read Moreby the British Society for Paediatric and Adolescent Rheumatology.
Read MoreTwo piers, a finish line, and two miles of ocean in between.
Read MoreDear Crazed EDSer,
Thanks for the shout-out.
Repairing tendons, rebuilding cartilage and down-regulating mast.
Read MoreThat “friend” who turns you against other people in your life.
Read Moreand what I have to say about it.
Read MorePerhaps hEDS causes my body to waste C, and injecting it into my fat gets around that on-going error = RELIEF!!
Read MoreAlways look like a champion, if only in a selfie.
Read MoreNot trying is (yawn) boring.
Read MoreI kept trying therapy, and I kept flunking out.
Read MoreAt the turn of the year, McGuff Compounding Pharmacy ran out of ascorbic acid. January came, and everyone wanted more. Including me. I had to get in the queue and wait. 😡
Read MoreI love to swim in the ocean. It is where I wanted to die.
Read MoreFor a long time after that appointment with that chiropractor in 2006 who told me I had this weird thing I had been born with of joints bending backwards, the words “Ehlers-Danlos Syndrome” haunted me. I couldn’t say them.
Read More