Then and now.Read More
by the British Society for Paediatric and Adolescent Rheumatology.Read More
Two piers, a finish line, and two miles of ocean in between.Read More
Dear Crazed EDSer,
Thanks for the shout-out.
Repairing tendons, rebuilding cartilage and down-regulating mast.Read More
That “friend” who turns you against other people in your life.Read More
and what I have to say about it.Read More
Perhaps hEDS causes my body to waste C, and injecting it into my fat gets around that on-going error = RELIEF!!Read More
Always look like a champion, if only in a selfie.Read More
Not trying is (yawn) boring.Read More
I kept trying therapy, and I kept flunking out.Read More
I love to swim in the ocean, especially alone and far from shore. I am a great swimmer. I am practically fearless in the ocean.Read More
For a long time after that appointment with that chiropractor in 2006 who told me I had this weird thing I had been born with of joints bending backwards, the words “Ehlers-Danlos Syndrome” haunted me. I couldn’t say them.Read More
Why am I alive.
I am not built for this world.Read More