Overcoming Ehlers-Danlos — Less Flexible

On Repurposing Drugs for Rare Disease

At the Global Genes 2019 RARE Drug Development Symposium.

My Insurance Paid for Ascor®

And Walgreens filled it.

Injecting Vitamin C, The OceanMadora PenningtonJune 6, 2019

On the Disease of Scurvy

Is hEDS an inherited form of scurvy?

Injecting Vitamin C, On..., Un-Disabled, Ehlers-Dental ProblemsMadora PenningtonMay 30, 2019Ascor

My Purple Dior Satchel

What use are things to an invalid?

Un-Disabled, Coming to Terms, Healing & Hope, My...Madora PenningtonMay 23, 2019

On Brené Brown

And my elaborate régime de beauté.

Anxiety & Depression, Look Good & Have Fun, Long Term Opiates, On...Madora PenningtonMay 15, 2019

On Medical Marijuana

And more on my long-term opiate use.

Long Term OpiatesMadora PenningtonMay 9, 2019

On Making C Shots Hurt Less

Here are the tricks.

Injecting Vitamin C, Coming to Terms, Look Good & Have Fun, On...Madora PenningtonMay 2, 2019AscorComment

On Human Connection

The Internet vs. IRL.

Exercise & Posture, On..., Go Clippers!Madora PenningtonApril 25, 2019

2019 EDS Society Global Learning Conference

Register here.

Diagnosis & DNAMadora PenningtonApril 18, 2019

Ehlers-Trauma Syndrome

3:13 a.m. Awake.

Global Genes 2018

My favorite place to be someone who was born sick. Register for 2019 here.

Coming to TermsMadora PenningtonApril 4, 2019

On ‘Serial’ and Adnan Syed

Contemplating the prison of Ehlers-Danlos Syndrome.

On The Healing Power of Vitamin C

Repairing tendons, rebuilding cartilage and down-regulating mast.

On “The Mighty”

That “friend” who turns you against other people in your life.

Hopelessness & Suicide, On...Madora PenningtonMarch 14, 2019The Mighty

Searching for Neck Pain Relief

My neck rarely bothers me now. Happy tears 😢.

Searching For..., Pain & Disability, Exercise & PostureMadora PenningtonMarch 7, 2019Comment

Searching for My Molecular Diagnosis - Round 6

What is the point of searching for my genetic cause?

Doctors & Hospitals, Diagnosis & DNA, Searching For..., Un-DisabledMadora PenningtonMarch 5, 2019Comment

My Day At Work

The harmful gene responsible for the disaster of hEDS causes a failure to metabolize Vitamin C properly. - my theory

My Abusive Ex-Lover, Ehlers-Danlos Syndrome

The pain of life without him.

Anxiety & Depression, Travel & Language, The Ocean, My..., Un-DisabledMadora PenningtonFebruary 21, 2019Comment

Ehlers-Danlos Script #3

Episode 3: Knee Brace

Ehlers-Danlos ScriptMadora PenningtonFebruary 14, 2019Comment

Why People Hate My Blog

and what I have to say about it.

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