The Mighty ran a piece I wrote, which makes The Mighty classier than I am.
Read MoreAnd that’s when I knew I had a drinking problem.
Read MoreHello, Gorgeous!
Read More- Numbered lists, meh.
- With a name like The Mighty, I was expecting to be inspired.
At the turn of the year, McGuff Compounding Pharmacy ran out of ascorbic acid. January came, and everyone wanted more. Including me. I had to get in the queue and wait. 😡
Read MoreLately for physical therapy, I pack up my toys and meet my physical therapist at the beach.
Read MoreExercising a mile high, in beautiful Palm Springs, California.
Read MoreHow to stretch without becoming overstretched. I want to be less flexible. But I do need some stretching.
Read MoreMr. Pennington and I ended our Disneyland 18 miles of walking weekend by skipping the shuttle and hoofing it 2 miles back to the hotel.
Read MoreFive years of injecting myself with Vitamin C everyday.
Read MoreThrough it all, Bravo programming sustains me.
Read MoreI’ve had pneumonia more times than I can count. No one can tell me why this happens. My squishy lungs? My deformed ribcage? Who knows. You too?
Read MoreSurgery, again! I have needed a few, starting very early in life. They have all been a special treat from Ehlers-Danlos Syndrome.
Read MoreWhat I am thankful for . . .
Read MoreI got an infection at my injection site.
Read MoreWhen people have the same genetic defect, this causes them to have similar facial features.
Read MoreGlobal Genes Rare Patient Advocacy Summit
I go every year. This conference is my favorite place to be someone who was born sick. You can watch the videos here.
Read MoreOur diagnostic criteria was recently revised. Here it is. Read it for yourself.
Read MoreWhat genetic flaw is causing Ehlers-Danlos Syndrome in me?
Read More